Hi all! Sorry for the lack of updates, but I just haven't had too much to talk about...which is good! I feel like I have had lots of thoughts/feelings to talk about, but when I start writing them I get overwhelmed and decide not to write anything at all. I mentioned in my last post, that life after cancer is a lot harder than I had expected. Although I am adjusting, it is still not easy. There are so many worries and thoughts that I have to deal with that it can be exhausting. Physically, I am not back to "myself" yet. I get easily fatigued, I've had shortness of breath with a cough, and have really achy and sore muscles. Have I mentioned that I HATE my hair? I'm sure I have. It is growing, but just looks weird! I am still wearing my wigs when I am out, but just got my hair trimmed and I will hopefully be brave enough to wear it in public soon with no wig. All I can hope for is that this all gets better in time.
I just had my first CT scan yesterday since finishing both chemo and radiation. The stress and anxiety of that scan were almost unbearable. Thankfully, I have amazing friends who kept me busy all weekend so that I would be distracted from thinking too much about it. I seriously don't know what I would do without my amazing friends and family! I had my scan yesterday at 8:00 am and received the results in the late afternoon. Great news...my scan came back CLEAR! No cancer...which is the best news I could ever ask for!
The sort of bad news is that it shows a "small patchy area of groundglass opacity in the left lower lung." According to my CT scan report, this could be due to pneumonia or possible post radiation pneumonitis. I am a little upset at my Oncologist that he did not even mention this patchy area on my lung to me...I found it on the report and had to bring it up to him first. He then wanted me to speak to my Radiation Oncologist about it. According to my Radiation Oncologist, since I have been experiencing shortness of breath with a cough, I most likely have pneumonia. She wants me to have another CT scan in two months to see if it is gone. All of this stuff scares me! Hopefully it will turn out to be nothing serious and will resolve itself and get better soon. If anybody else who reads my blog has experienced "groundglass opacity" in their lung(s) post cancer treatments, please comment below.
Steph!! Congrats on the scan!! I'm sorry to hear about the possible pneumonia - I hope it clears up soon! I'll be updating my own blog soon as I realized I really never concluded on how radiation finished up, but school has been crazy (like always haha). I feel like I've never really had the time to just relax and figure out what my thoughts and feelings are regarding this whole "cancer experience."
ReplyDeleteYayy Congratulations!! I'm not sure if my situation was the same as yours, but my first MRI/CT after chemo showed a questionable spot on my lungs as well...possibly pneumonia, I'd have to look at the report to see if it was "groundglass opacity" lol but I remember freaking out about it! They made me do a PET scan and that was clear so turned out to be nothing, but the stress and anxiety was definitely exhausting!! Good news is things WILL get better, even if it takes a while like it did for me.
ReplyDeleteI'll write again soon just wanted to tell about my spot and hopefully make you feel a little less anxious about it!
xoxo
Congrats on the clean scan! I can't imagine what it's like to deal with scanxiety but I see Kayla go through it and I wouldn't wish it on my worst enemy. =\
ReplyDeleteBig hugs from the Northwest!
I just wanted to say thank you for your blog. I am 62 and in good physical condition prior to be diagnosed with Hodgkin's Lymphoma stage 3B. About two months ago I completed 6 months of chemo and my latest scan shows the cancer is all gone except a small mass in my chest. It looks like I will be getting radiation. During my cancer treatment I have referred back to your blog several times. The detail of your blog has been very helpful. Just wanted to say thank you-it really helped. My best to you!
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